B.E. Gibson and others
Disability and Society, vol. 24, 2009, p. 317-330
'Consumer-directed personal assistance' has been a central tenet of the North American independent living movement since its inception. This is, however, little research on how consumer-directed assistance gets played out in practice. This paper presents the results of a qualitative study that examined the relationship between disabled ventilator users and their paid personal support workers in supported housing in Ontario, Canada. It explores how participants described and evaluated their relationships in relation to the independent living philosophy and consumer-directed personal assistance.