End of life care: a resource pack for those caring for or supporting people with a learning disability at the end of life

Document type
Gibson, Lynn; Matthews, Dorothy
NHS National End of Life Care Programme
Date of publication
2 August 2007
Health Services, Social Work, Social Care and Social Services
Social welfare
Material type

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This guide is aimed at people working in health and social care, families and carers who provide crucial support in the final stages of life for people with learning disabilities. It contains targeted, easily accessible and practical information, including resources to:

  • Improve the management of specific symptoms
  • Identify how the use of end of life tools can reduce unnecessary hospital admissions
  • Ensure coordinated working between different organisations and agencies
  • Give confidence to carers, particularly those who are family members or working in care homes
  • Improve bereavement support.