This review shows that young people with complex health needs do not always receive the care and support they need when they move on to adult care services. The transition process can be a difficult time for young people and their families. During this period, they stop receiving health services that they may have had since a young age (such as care to support mobility, breathing, swallowing or pain) and move on to equivalent adult services which can be structured and funded differently. Some of the problems found included:
- children's services stopping the care they provide before the equivalent adult services had started.
- families feeling confused and distressed by the lack of information and support given to them.