This report documents the methods and results of a 2009 MS Society survey of people with Multiple Sclerosis (MS) and their carers. The purpose of the survey was to investigate which respite care services are currently used by people with MS and their carers, their views on these services, and their preferences for respite care.
Amongst respondents to the postal survey the most frequently used service was holiday breaks, followed by day respite, breaks in MS Society centres and then breaks in residential or nursing homes. Including all respondents to the consultation the respite care services used most by people with MS and their carers were breaks in MS Society centres, followed by day respite and then holiday breaks.
Overall, people found the respite care services that they used to be of high quality and beneficial to them. The MS Society centres were rated higher than any other service in terms of benefit and quality.