This report shines a light on the impact the fear around dementia has on those living with the condition, their families and carers, and how it prevents the research community capturing a full picture of the disease. According to data in the report, people over the age of 55 fear being diagnosed with dementia more than any other condition and at least 1 in 4 people hide their diagnosis, citing stigma as the reason.
The issue of stigma is widely acknowledged as a serious challenge for people with dementia and their carers at the individual, family and societal level, and acts as a barrier to access care, support and treatment. However, limited attention has been focussed on the origins of stigma and stigmatisation. The overarching goal of this collection of essays is to shed greater light on the causes of stigma and explore this from a multidisciplinary perspective. Following a high level discussion in the House of Lords, the themes that emerged are explored in this compendium, with contributions from across academia, the public and private sectors and the voluntary sector.